From the AlzAuthors Blog: Carol B. Amos Shares “H.O.P.E. for the Alzheimer’s Journey”

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By Carol B. Amos

My two brothers and I were devastated when our mother began displaying signs of Alzheimer’s disease in 2002. She lived alone in her home and her nearest adult child lived four hours away. We banded together to face this challenge head-on. We began a period of observing, investigating, collaborating, and careful listening to gain insight into the situation. We visited and called our mother more often. We each solicited advice from caregivers we knew and visited our local Alzheimer’s Association office.

My brothers and I worked hard to help our mother maintain her independence and remain in her home. We worked with her doctors, and after multiple attempts Aricept was prescribed. We hired a social worker and nurse to assist her. When “issues” arose, we never knew if an event occurred as she explained. This was extremely frustrating to us. Eventually a dangerous incident demonstrated that she could no longer live alone. It was difficult taking responsibility for our strong, independent mother. Continue reading

From the AlzAuthors Blog: Meet Tamara Prosper, author of “The Elders,” a Collection of Short Stories

Elders are not merely old people. Regardless of their current condition, at heart they’re still parents, spouses, teachers, veterans, housekeepers, artists, entrepreneurs, farmers, neighbors, caregivers, and friBy Tamara Prosper

Ever since I can remember trying to navigate through grief, frustration, anxiety, anger and sometimes even joy, writing has been the compass that lead me to equilibrium. Seven months after uprooting my family by moving from our home in a major southern city to take what I expected to be my dream job as the Administrator of a beautiful nursing home in rural North Carolina, I was exhausted, frustrated, angry and depressed. My children had quickly adjusted to our new environment. My husband seemed to be moving forward in his business endeavors. He and the children appeared to be quite content with everything except for the fact that I spent very little time with them. My friends lived far away and I had little time to make new friends so I poured my feelings into journals.

When saddened by the unexpected death of a resident, I wrote. When I was frustrated by demands from the corporate office, I wrote. When angered by the unrealistic expectations of resident’s family members and when my character was questioned, I wrote. When my staff was mistreated and when we celebrated our first deficiency-free annual state survey, I wrote. I wrote of individuals that I worked with before moving to North Carolina. I wrote my imagined explanations for the exasperating behavior of certain residents and their loved ones. I placidly withstood and gently addressed blatantly disrespectful behavior from a resident’s family member, then filled pages with the fury that had been veiled behind my calm demeanor. Hurt feelings, sweet memories, righteous indignation, joy, sorrow, celebration, dread, and voracious hope flowed from my spirit to my journals.

book cover (1)In nine months I had written and edited more than a dozen stories, finally choosing those that I believed were worthy of sharing with the world. I wanted people to see the humanity of elders and their caregivers. Elders are not merely old people. Regardless of their current condition, at heart they’re still parents, spouses, teachers, veterans, housekeepers, artists, entrepreneurs, farmers, neighbors, caregivers, and friends. They want what everyone wants – to enjoy a good meal, to laugh at a funny story, to spend time with loved ones, and to contribute to the world. Caregivers, whether professionals or responsible loved ones, are among the unrecognized heroes of our society. They give far more than they receive, simply because they know it must be done. By sharing varying perspectives and situations I seek to make these truths known.

By having a glimpse into the lives of The Elders, people may recognize someone they know or have a frame of reference for someone in the future. I want people to feel a connection with The Elders so they will empathize with and advocate for the elders in their communities.

Purchase The Elders

About the Author

Tamara G. ProsperI’m an Aging Services Professional with a sincere love for older adults and a resolute desire to see them thrive throughout all stages of life. I work directly with elders in organizations that support their care. I share as much information as possible with as many elders and caregivers as possible, to prepare, inform, educate and encourage them as they experience aging. I’m thankful to have received very positive feedback from readers.

Connect with Tamara Prosper

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For more extraordinary books about Alzheimer’s and dementia please visit the AlzAuthors Bookstore.  Reposted with permission of AlzAuthors, the global community of authors and readers whose lives have been touched by Alzheimer’s and dementia. I am a co-founder and admin.

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From the AlzAuthors Blog: Ellen Smith Discusses Her Alzheimer’s Novel “Reluctant Cassandra”

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By Ellen Smith

Reluctant Cassandra came to me first as a title. I’ve always been fascinated by Greek mythology and especially with the character of Cassandra. She was given the gift of prophecy along with the curse that her warnings would never be believed. In Greek mythology, Cassandra’s story ends with the fall of Troy—a tragedy she foresaw but was unable to prevent.

What would it be like to see the future and still be helpless to change the outcome? Unfortunately, I’ve lived that experience. Many of us have. When I wrote my own version of a modern-day Cassandra story, I imagined a woman whose father had been diagnosed with Alzheimer’s. She could see clearly that his health was deteriorating, but it was still so hard for her and her family to accept the future that was unfolding.

Reluctant Cassandra LargeThe journey that my characters took through anticipatory grief was very similar to what I had just been through in my personal life. I actually wrote Reluctant Cassandra the year after I lost my son. Living through his diagnosis and passing was a heartbreak I hadn’t been able to put into words, but when I stepped into this fictional world, the pain of my own Cassandra experience poured out.

While writing Reluctant Cassandra was cathartic, the story continued to take on a life of its own after publication. Only a week after my release date, I received my first letter from a reader. She had connected strongly with the story because it mirrored her own experience after her father was diagnosed with Alzheimer’s. I was so touched that she reached out to share that with me—in fact, I still have her email printed out and pinned over my desk! Her letter was later joined by more notes from other members of the Alzheimer’s community. Here I had written this story at a time when I felt so alone and now it was connecting with readers from all over.

In the three years since Reluctant Cassandra was published, I’ve continued to write and advocate for those with Alzheimer’s. I released a short story collection loosely based on the setting of Reluctant Cassandra on Channillo for Charity, with all proceeds going to benefit the Alzheimer’s Association. Even though I didn’t know anyone with Alzheimer’s when I was first writing Reluctant Cassandra, this disease now has many faces for me. I see those who have been diagnosed with Alzheimer’s themselves, as well as their families, friends, and caregivers. I’m grateful to them for telling me their stories, and honored that they are willing to hear mine, too.

This is the true gift of a story: it reaches across the barriers of time and place and circumstance and allows us to connect with each other. The Greek myth of Cassandra was first told hundreds of years ago, and yet the story still impacted me as a 21st century reader. My novel was inspired by a grief I couldn’t put in to words, but writing this story allowed me to become a part of the Alzheimer’s community. I could never have imagined where the book would lead me when I first thought of the title years ago. I am beyond grateful that it brought me here.

author headshotAbout the Author

Ellen Smith is the author of Reluctant Cassandra, Every Last Minute, and the Channillo for Charity series Ghosts of Eagle Valley, which benefits the Alzheimer’s Association. When she isn’t busy writing, Ellen can usually be found reading, crafting, or playing piano. No matter what she is doing, Ellen is always wondering, “What if?” Ellen lives with her family near Washington, DC.

 

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From the AlzAuthors Blog: AlzAuthors Launches Its “Inspiration Collection” During Cruise Dementia Conference

AlzAuthors is thrilled to join a new cruise and conference designed for those living with early-stage Alzheimer’s, their caregivers, and their loved ones. The AlzAuthors Inspiration Collection: Extraordinary Books about Alzheimer’s and Dementia will sail to the Caribbean April 6-13 during the inaugural Connecting Circles of Care and Building Bridges of Hope Cruise & Conference, an empowering 7-day retreat experience that offers respite and education.

Lisa Chirico

“Our cruise and conference provide an opportunity for attendees to benefit from a wide range of programming created for their complex and stressful lives,” says Lisa Marie Chirico, Dementia Caregiver Cruise and Conference Producer. “Additionally, the tropical wonders and beauty of the Caribbean offer healing for both the body and the spirit, so it’s a perfect pairing.” Chirico was a full-time caregiver for her father, who had Alzheimer’s disease, and is passionate about supporting dementia caregivers and their families. She currently works as a Nursing Home Navigator Coach for clients experiencing long-term care at Nursinghomeology.com. Continue reading

From the AlzAuthors Blog: Jessica Bryan Returns with “The Mighty Ant – An Anthology of Short Stories for Seniors”

_just like the little ant, whose size is disproportionate to its strength, so can stories have strong impact, regardless of their length._
By Jessica Bryan

I am an author of over 28 books who has always shared my stories with my mother. Sadly, Mom suffers from Alzheimer’s, and as the disease has progressed she no longer comprehends more intricate plots, nor can she focus on longer, more detailed stories.  As a consequence, I began reading short stories to her. I noticed that after reading something more easily comprehended, there was often something in the tale that sparked a memory and conversation.  “Do you remember gardening?” I asked her after reading about a gardener. It brought a sweet reminiscent moment that included smiles and even laughter. That spawned my idea for a book of short stories specifically dedicated to the elderly with cognitive issues and their caregivers who often search for activities that will provide quality time with their loved ones. Continue reading

The Writing Life: Author Collaborations – How to Make Friends and Find Readers

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This post was originally published on Books Go Social and is reprinted with permission.

By Marianne Sciucco

In 2013, when I published my first novel, Blue Hydrangeas, an Alzheimer’s love story, I was like most new indie authors: I had no idea how to market it or find readers. My first efforts were disappointing, and I found myself struggling to find footing in an overcrowded book market. The fact that my book was a sort of niche book on a difficult subject added to my frustrations.

In addition to being a writer I am a registered nurse with no formal training, education, or work experience in publishing, business, or marketing. I learned all I could on my own by attending conferences (online and in person), reading books and blogs, and participating in webinars and online classes. Continue reading