By Daniel Kenner
After many long months of exhaustive family struggles, cognitive and behavior changes, and a lengthy process of medical evaluations and tests, my dad, Buddy, received the devastating diagnosis of Frontotemporal Lobe Dementia (FTD). It was Valentine’s Day, 2013. FTD is a rare neurological disease that affects personality and social behavior, speech and language comprehension, and executive functions involved in reasoning, decision-making, and planning. Never to be outdone, my mom, Maureen, always the fierce competitor, was diagnosed with Stage 4 colon cancer only four months later.
That year, my best friend’s parents died in a terrible plane crash and that sudden tragedy struck me in such a profound way. “I am going to lose my mother and my father,” I remember thinking, “but I still have time.” I don’t know which is worse: losing parents instantly or watching them slowly deteriorate, but I knew I wouldn’t squander the chance to say goodbye.
Dad was a natural storyteller, and through that he became my favorite story to tell. He was my hero. The highest compliment I can give of my dad was he had a son that idolized him. Everything he loved I was determined to love just as much or more: Bob Dylan, Lenny Bruce, Marlon Brando, absurdist theater, and the San Francisco 49ers. But dementia made him quiet and apathetic; he no longer expressed an interest in the things we used to do together. Continue reading
Summer will soon be upon us and that means more time to read!
But if you’re active you may not want to sit around with a book.
Audiobooks are perfect for people on the go. You can listen to a great story while on the road – they’re terrific for long drives – or while lounging in the pool or on a hammock, taking long walks, even mowing the lawn.
Here is a collection of great Young Adult titles from Clean Indie Reads authors for your listening pleasure. We offer a variety of genres: sports, paranormal, fantasy, historical fiction, thriller, romance, and more. Peruse the selections, purchase from Amazon or Audible, then enter our raffle to win a free book.
How do you do audiobooks? Continue reading
By Leah Stanley
I began writing Goodnight, Sweet: A Caregiver’s Long Goodbye in 2001. For me, committing the story to print was a cathartic experience following the deaths of my grandparents two years earlier. Edward Meade had battled an unspecified dementia while his wife Clara was afflicted with Alzheimer’s. As their designated caregiver, a role which I had gladly—and sorrowfully—taken on, I walked alongside them down that tedious road while loving, caring for, and protecting them.
Every afternoon when my then almost two-year-old son would go down for his nap, I would sit at my computer and write diligently, reliving the moments which, when put together, told the full story; I would laugh and I would cry as I remembered the decisions and recalled the words, reactions and facial expressions of those around me. I felt it was imperative that my experience as an Alzheimer’s/dementia caregiver not fade away with time, but that it be shared because I came to realize there were so many others following that same winding trail I’d walked, and I remembered how I was always encouraged when I could talk with someone who had been engulfed in a similar circumstance. I believe it’s one of the ways God designed us, being able to meet on the common ground of shared events. Continue reading
By Julie Bigham
My passion for bringing joy to the lives of seniors began at an early age, when my gramps encouraged me to entertain at his Senior Center. Fifteen minutes of stand up, egged on by applause from the crowd, ignited a spark of love in my heart for the older generation. Thirty plus years later that spark has erupted into a full flame of passion for providing support to professional and family caregivers caring for loved ones living with Alzheimer’s.
Through my work experience as an activity professional, it became evident to me that providing high quality, compassionate care for those living with Alzheimer’s takes a village, and family engagement in any setting is vital. Families can become overwhelmed with doctor visits, medication changes, increasing care needs, and care plan meetings, not to mention the emotional stress. With everything they juggle, families can forget the importance of spending quality time having fun with their loved one, often spiraling into isolation and depression. Continue reading
Now this is a different take on The Land Uncharted Series. If you’ve been following me you know that I’m a big fan of Keely Brooke Keith and her genre bending stories about the Colburn family and the folks in The Land. A skillful mix of historical, romance, and paranormal fiction, Keith’s stories never fail to entertain and always get you thinking.
Bailey Colburn is safe in the Land, but her father figure, Professor Tim, never made it to Good Springs. When Bailey discovers Tim is lost in the Land’s dangerous mountain terrain and out of his life-saving medication, she sets out to rescue him. Even with the help of intriguing native Revel Roberts, Bailey faces an impossible journey to save Tim. The mountains are shrouded in dark folklore and full of deadly surprises.
Revel Roberts never stays in one place too long. No matter where he travels in the Land, he avoids the Inn at Falls Creek, his boyhood home and the business he will inherit. But when fearless newcomer Bailey Colburn needs Revel’s help to find her friend, he joins the mission and is forced to return to the place he’d rather forget.
By Krysten Lindsay Hager
I started writing Dating the It Guy as a romance between a high school girl and the popular senior son of a senator, but I also wanted to include a storyline of having the main character deal with her grandpa’s recent dementia diagnosis. My grandfather moved in with us when I was Emme’s age because he could no longer live on his own. I decided to write about it years later just to get it out. In fact the first time I read a section of it to my mother, she left the room because it was too much to deal with. It’s tough to look back at memories like that sometimes.
So I finished the book, but set it aside for a while. Then two years ago, there was a pitch contest online and I decided to see if there would be any interest in this story. My publisher said she’d be interested in seeing it. At that time I had only published middle grade novels with her and wasn’t sure she’d want a young adult novel from me—after all there are a lot of publishers who aren’t fond of genre hopping. I remember when I sent it to my publisher I mentioned I hoped that this book would help someone else. My publisher wrote, “have I told you I love your writing?” Continue reading
Adele has been lost for a long time now …
Adele Collier has sought a carefree lifestyle ever since her tragic childhood. Determined to never allow anyone or anything to control her life or emotions again, she consistently seeks distraction in gaiety. But shaking her ghosts isn’t as easy as she’d like.
Troy Kee has been alone in the world since the Great War took his parents and left him in care of his younger sister. When she marries, he’s left to seek after his goal of a healthy, complete family. But how can he focus on his dream when trouble plagues his family vineyard?
When Adele and Troy meet, a whirlwind romance begins—but can two lost souls have a healthy relationship?
Purchase Souls Astray Now!
Amazon ~ Goodreads ~ A Special Review Defining the Content Level ~ My Website
Can it standalone?
Yes, but you’re gonna want to read book 1 when you finish for sure! 😉
What Folks Are Saying
By Jack S. Cohen
This is a true story about coping with my beloved wife’s devastating diagnosis of Alzheimer’s disease (AD), the terrible scourge of our age. In general, people are living longer and diseases of the aged are becoming more prevalent. The major neurological disease of the aged is in fact AD. Whenever a person is diagnosed with AD, their spouse automatically becomes their primary carer and unwittingly also becomes a prisoner of the disease.
There have been many excellent books and descriptions of AD and its ravages upon the minds and lives of people, so why write another account? Each case of AD is unique and two novel aspects of this account are: the focus on the way that AD imprisons both the patient and their spouse in a constant process of deterioration, and the inclusion of an almost daily journal describing raw incidents that can be enlightening for the reader, and especially for the spouse of an AD sufferer. This illustrates the vicissitudes and the almost total preoccupation that this disease encompasses. Continue reading