AlzAuthor Julie Bigham Shares How to Create Joy Filled Visits in the Midst of Alzheimer’s

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By Julie Bigham

My passion for bringing joy to the lives of seniors began at an early age, when my gramps encouraged me to entertain at his Senior Center. Fifteen minutes of stand up, egged on by applause from the crowd, ignited a spark of love in my heart for the older generation. Thirty plus years later that spark has erupted into a full flame of passion for providing support to professional and family caregivers caring for loved ones living with Alzheimer’s.

Through my work experience as an activity professional, it became evident to me that providing high quality, compassionate care for those living with Alzheimer’s takes a village, and family engagement in any setting is vital. Families can become overwhelmed with doctor visits, medication changes, increasing care needs, and care plan meetings, not to mention the emotional stress. With everything they juggle, families can forget the importance of spending quality time having fun with their loved one, often spiraling into isolation and depression.

While some family caregivers spend hours visiting a loved one, others hope to remember them as they were. Both situations are understandable, as people find different ways of coping with the stress that accompanies an Alzheimer’s diagnosis. For the benefit of both, I set out to create a product that can help families maximize the time they spend with a loved one to assure that visits are filled with positive interaction and fun, thus eliminating common feelings of guilt and sadness.

bigham coverThe Joy Filled Visits Kit, completed in 2015, is filled with tools I found most helpful in my career, and includes an easy-to-read manual. The kit helps families create a simple plan for each visit to keep their loved one engaged in the life of the family for as long as possible. At the encouragement of a librarian, I reformatted the kit into book form to give easier, more affordable access to the same helpful information to people all around the globe.

Using the book as a guide, Joy Filled Visits also offers a 4-session class for caregivers – walking participants through a review of Alzheimer’s, the symptoms, the challenges those symptoms can create for engagement, and tips for overcoming those challenges.

Here are reviews from a few participants:

“The Joy Filled Visits program gives an encouraging, fresh approach filled with ideas to interact with your loved one in a fun, personal way.”

“Having a new expectation and new set of tools to communicate with, has [given us] … much happier days.”

“I took care of my mom for years and felt very lost as to how to help her. After taking Julie’s classes, I feel I am better able to help her; and if she is agitated, I am able to defuse the situation and give her a happier time.”

Purchase Creating Joy Filled Visits in the Midst of Alzheimer’s

About the Author

bigham photoJulie Bigham, NHCT, began her career as an activity professional in 1993. In 2016 she dedicated herself full-time to Joy Filled Visits, LLC, providing support and motivation for caregivers through training, consultation, and public speaking. She hosts the Joy Filled Visits Memory Café in Matthews, NC, and provides additional support through a free monthly newsletter. She is also a Nursing Home Certified Trainer for Second Wind Dreams®/Virtual Dementia Tour’s NC Grant project.

Connect with Julie Bigham:

email: julsbigham@yahoo.com
Website
Facebook: Joy Filled Visits, LLC
Twitter: Joy Filled Visits @julsbigham
Amazon: Creating Joy Filled Visits in the Midst of Alzheimer’s

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For more vetted books and resources about Alzheimer’s and dementia please visit the AlzAuthors Bookstore. Reposted with permission form AlzAuthors.

Krysten Lindsay Hager Writes Dementia -Themed Fiction for Young Adult Readers

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By Krysten Lindsay Hager

I started writing Dating the It Guy as a romance between a high school girl and the popular senior son of a senator, but I also wanted to include a storyline of having the main character deal with her grandpa’s recent dementia diagnosis. My grandfather moved in with us when I was Emme’s age because he could no longer live on his own. I decided to write about it years later just to get it out. In fact the first time I read a section of it to my mother, she left the room because it was too much to deal with. It’s tough to look back at memories like that sometimes.

So I finished the book, but set it aside for a while. Then two years ago, there was a pitch contest online and I decided to see if there would be any interest in this story. My publisher said she’d be interested in seeing it. At that time I had only published middle grade novels with her and wasn’t sure she’d want a young adult novel from me—after all there are a lot of publishers who aren’t fond of genre hopping. I remember when I sent it to my publisher I mentioned I hoped that this book would help someone else. My publisher wrote, “have I told you I love your writing?”

DatingtheItGuy500x750During the final editing process, I had my mom read the manuscript and told her, “I’m not sure you’ll like this one because it’s very personal, so be warned.” I’ll never forget her calling me and saying it was her favorite book I had written and she felt I handled those scenes with the grandpa with such sensitivity and love. She loved the sense of love and family in it and how I handled it with dignity and that meant so much.

I basically have a peace about what I wrote, but it was very hard putting this book out there. You’re taking a very personal experience and opening it up to criticism from strangers who haven’t walked in your shoes. What made it worthwhile was that the feedback on it has been wonderful as people love the humor and the family bonds. I think having the humor in it helps as that gets you through difficult times and it shows that you can continue to laugh even while going through a storm.

My main goal was wanting to show that dealing with dementia can deepen a relationship and you can love someone deeper when taking care of them. It was hard being one of my grandpa’s caregivers starting as a sophomore in high school until I was well into college, but I loved spending time with him.

Along the way,  I realized that if I went through that as a teen, then there were other teens who had taken on a caregiver role (along with their parents) to a family member. I wanted to give those teens a book that understood what they were going through. Sometimes knowing you’re not alone in a tough situation can help so much and I hope I did that for my readers.

Purchase Dating the It Guy

About the Author

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Who knew all those embarrassing, cringe-y moments in middle school and high school could turn into a career? And who would have thought that daydreaming in math class would pay off down the road?

​Krysten Lindsay Hager writes about friendship, self-esteem, fitting in, frenemies, crushes, fame, first loves, and values. She is the author of True Colors, Best Friends…Forever?, Next Door to a Star,  Landry in LikeCompeting with the Star (The Star Series: Book 2), Dating the It Guy, and Can Dreams Come True.

Her debut novel, True Colors, won the Readers Favorite award for best preteen book and the Dayton Book Expo Bestseller Award for childen/teens. Competing with the Star is a Readers’ Favorite Book Award Finalist.  Krysten’s work has been featured in USA Today, The Flint Journal, the Grand Haven Tribune, the Beavercreek Current, the Bellbrook Times, Springfield News-Sun, Grand Blanc ViewDayton Daily News and on Living Dayton. ​

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For more vetted books about Alzheimer’s and dementia please visit the AlzAuthors Bookstore. Reposted with permission from AlzAuthors.

 

 

AlzAuthor Rosalys Peel Shares her Alzheimer’s Caregiver Story in “Mike & Me”

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By Rosalys Peel

Every two minutes someone in America is diagnosed with Alzheimer’s. Most will face this discouraging illness with their wife, husband or partner at their side. And yet the typical “Alzheimer’s couple” has no idea how to make the most of what lies ahead.

This is the predicament my loving husband Michael and I found ourselves in when we discovered that Mike had been diagnosed with Alzheimer’s. Over 35-plus years of marriage we had always dealt with problems together. But now we were advised to start preparing ourselves for the day when Mike would surely be moved from our home to an outside care facility. We simply weren’t ready to accept that.

“I don’t want to leave you and our home,” Mike told me—and so we made a deal. Despite all the scary stories we were hearing about this disease we decided to stand up to Alzheimer’s and defy the statistics as long as possible. Together we would go right on pursuing our hopes and dreams as husband and wife, confronting the disease together in our own home, and living the fullest life possible…for as long as possible.

Mike&Me CoverWriting a book was the last thing on my mind at that time, but I did start keeping a journal. At first I was just trying to record new information and treatment advice from our doctor. But it turned out that journaling became a very empowering and comforting companion for me over the entire nine and a half years that Mike and I dealt with his Alzheimer’s.

My journal was a safe place where I could give words to my worries, concerns and fears. It’s where I logged the frustrations and setbacks that Mike and I encountered, but also where I recorded and celebrated our many victories, large and small. Day by day, my journal chronicled the astonishing power of mutual love, patience, compassion and stay-at-home care. Over time I became convinced that other couples and caregivers might be able to benefit from some of the new approaches Mike and I were learning.

Despite Mike’s illness we eventually exceeded virtually every typical Alzheimer’s expectation. Together, we travelled to several countries, helped care for our granddaughter, maintained our romance, kept Mike on his feet, celebrated every milestone, and found new ways to communicate with our friends, family and each other. We also saved countess thousands of dollars by caring for Mike in the familiar surroundings of our own home right up to the very end.

Mike eventually died, but he died as we all wish to die—with dignity and grace. And not before we had enjoyed nearly 10 full years of life, love and, yes, laughter together.

Gradually, there was the birth of a new idea in me. Looking back to when Mike was first diagnosed I could remember how I had searched the bookshelves in vain for a book that would help couples like Mike and me navigate the Alzheimer’s journey together. Later, I had a chance meeting with an experienced and caring writer who gave me this quote by author Toni Morrison: “If there’s a book that you want to read, but it hasn’t been written yet, then you must write it.”

I took that quote to heart and set out to write Mike & Me as my gift to other Alzheimer’s couples and their families who are just now starting their journey. While the word Alzheimer’s usually triggers pessimistic feelings, Mike & Me is an optimistic book, and for good reason.  It chronicles the changing face of home care among Alzheimer’s couples. And it shows how the astonishing power of love, patience, compassion and stay-at-home care can help Alzheimer’s patients defy the usual statistics and live a longer, fuller, happier life despite this discouraging disease.

Writing this book has been a work of heart, and I know Mike would be happy that what we learned together on our Alzheimer’s journey is now helping other couples, families and caregivers.

About the AuthorPeel_Rosalys_396_culledb

Rosalys Peel is a Registered Nurse, a Lamaze-certified childbirth educator, and a Gottman-certified couples’ relationship facilitator. She teaches classes at Seattle’s prestigious Swedish Medical Center and has been featured on NPR and The Today Show. She remains a tireless teacher, writer and speaker, and a caring advocate for Alzheimer’s couples, families and caregivers everywhere.

 In more good news, Mike and Me has been named a Finalist in the 21st annual Foreword INDIES “Book of the Year Awards.”

Connect with Rosalys Peel

WEBSITE  www.MikeAndMeBook.com

FACEBOOK.  https://www.facebook.com/mikeandmebook/

TWITTER:  @PeelRosalys

EMAIL:  Rosalys@bainbridge.net

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For more vetted books about Alzheimer’s and dementia please visit the AlzAuthors Bookstore. 

Reprinted with permission from AlzAuthors, the global community of writers sharing their personal Alzheimer’s and dementia stories to light the way for others.

With Recipes, Poetry, and Prose Author Miriam Green Shares her Alzheimer’s Story in “The Lost Kitchen”

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By Miriam Green

When my mom, Naomi, was first diagnosed with Alzheimer’s I felt relieved. The doctors had finally acknowledged what our family had surmised for almost a year—Mom was losing her memory. Ok, I thought, what now?

Little in our lives changed at first. Mom still rattled around in her kitchen, she was still an avid music lover, conversationalist, and sweet companion. She could maintain her household, and even stay by herself in the evenings when my dad, Jack, was busy. But the signs were everywhere.

There was the day she tried to unlock the front door to her apartment with the wrong key. It didn’t occur to her that she should try another one, or even ask for help. I was waiting patiently on the other side as she jammed that key into the door over and over, swearing in language I had never in my life heard her utter. Daddy rushed from the shower, thinking she’d hurt herself with all the screams. It took a while to calm her down.

What did change dramatically in my life was a commitment I made to visit my parents once a week. I traveled 2½ hours each way by public transportation to be with them. Mostly, I was there for Mom. Those were wonderful mornings. We would do all manner of activities together, ambling around the city, drinking coffee, and enjoying the sunshine. I used those visits to organize my parents’ kitchen and cook them food for the week.

cover 7b Top to Bottom FadeI was privy to Mom’s anxiety over her waning memory. I held her as she cried bitter tears and told me she felt confused. It was the first indication that our roles would soon be reversed, that I was losing my mom by degrees, that the only way forward was a painful decline that inevitably led to death.

It’s been more than seven years now. I’ve learned a few things along the way— to avoid questions in my conversations with Mom; how a person’s gait can define their ill health; that front-closing bras are an Alzheimer’s intimate friend; and how to judiciously use her memory loss for our gain.

I don’t think we can ever be prepared for the strange turns and curves life throws us, but I do know that it helps me to write about them. First came the poetry. Then, what was initially a project I started with my dad as a humorous initiation into the world of cooking and caring for a spouse with Alzheimer’s—we called it “The Man’s Emergency Cookbook”—eventually morphed into its current composition. Thus were born my cookbook and my weekly blog. I didn’t need to be alone in my frustrations, fears and struggles. I could connect with the community of Alzheimer’s patients, their families and caregivers who were only a short click away.

And through it all, I cooked. I took what Mom had taught me when she was still active in the kitchen and used that as a basis to experiment with easy recipes that fed my spiritual and emotional hunger. My book, The Lost Kitchen: Reflections and Recipes from an Alzheimer’s Caregiver, is a combination of recipes, poetry, and prose about my family and how we have shared the demands of Mom’s Alzheimer’s.

About the Author

Green, Miriam headshotMiriam Green writes a weekly blog, The Lost Kitchen,  featuring anecdotes about her mother’s Alzheimer’s and related recipes. Her blog also appears on the ALZ Blog from the Alzheimer’s Association.  Her poetry has been published in several journals, including Poet Lore, The Prose Poem Project, Ilanot Review, The Barefoot Review, and Poetica Magazine. Her poem, “Mercy of a Full Womb,” won the 2014 Jewish Literary Journal’s 1st anniversary competition. Her poem, “Questions My Mother Asked, Answers My Father Gave Her,” won the 2013 Reuben Rose Poetry prize. She holds an MA in Creative Writing from Bar Ilan University, and a BA from Oberlin College. Miriam is a 20-year resident of Israel, and a mother of three. You can find Miriam on Facebook and Twitter at @thelostkichen.

 

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How Saying “Yes” Helps Caregivers: Introducing “Start With Yes!”

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From the AlzAuthors Blog

By Cathi Braxton and Tami Neumann

Janna, a resident in a memory care facility, woke up one night and found a few staff members congregated around the nurses station.  When a nurse asked Janna what was wrong, Janna told the group that there were alley cats outside her window making all sorts of ruckus.  Several of the nurses seemed dismissive of  Janna with their sideways glances and eye rolling, but one staff member, Terry,  approached Janna with a kind but concerned smile on her face.

“Janna, let’s go see what all that ruckus is all about.  I suspect alley cats get hungry at this time of night.”  With that the two of them headed back down the hallway and disappeared into Janna’s room.

A few minutes later Terry returned content.  The other staff were less confident, “Oh, she’ll be back out… Just you wait and see.”  But Janna never came back out of her room that night.  She was checked on 30 minutes later and was fast asleep.  “How did you do it?” the nurses questioned.  Terry explained that it was as simple as “Yes, And…”  Intrigued, they all huddled together to learn what this really meant.

“Yes, And…” is the foundational rule to improv and improv, at its core, is all about creating relationships.  The concept of “Yes, And…” puts into perspective the value of creating and maintaining a relationship above all else, allowing the flexibility to create something meaningful out of nothing.

Copy of Start With YES CoverWith our first book, Start with Yes! we dive into two profound improv rules anchored in connection. This quick read was tested amongst various age groups and caregiving abilities, proving to be accessible to all readers!  Additionally, Start with Yes! was formatted in such a way that even the busiest caregiver could glean insight and practical concepts immediately.  By committing just 10 minutes per night, the book can be accomplished in less than a week.

Confidence becomes shaken when a novice caregiver feels overwhelmed by multiple steps, instructions and long dissertations.   It was important for us to create a book that was digestible, funny, entertaining, educating, and most of all, insightful. Start with Yes! is a book that embraces neutral terminology, assisting caregivers in better understanding themselves and therefore the situation around them.

Here’s what readers are saying:

“This book is required reading for anyone caring for a person living with dementia. The Dementia RAW method is an innovative and compassionate approach that shows, through the rules of improv and the four pillars of empathy, how communications can move from disruptive frustration to peaceful understanding and ease. Cathy and Tami’s signature tell-it-like-it-is style coupled with their years of clinical training and research will transform your caregiving experience.” – Colleen Kavanaugh, Owner of The Longest Dance

“I read Start with Yes! late in my journey with my wife, Maureen, as her Alzheimer’s progressed. I was working hard to understand what my wife was thinking, and was not always successful. Start with Yes! gave me another, easy to remember method to keep my focus on what my wife was experiencing. I have found great peace and comfort in knowing that going into my wife’s world made all the difference for her and for me. We avoided so many confrontations in her last year because I paused and tried to agree with her, even knowing we could not always follow through on something. Maureen was satisfied that I had said “yes”.  She did not have to become agitated and angry. Our journey was hard and saying “yes” can be challenging but I don’t regret a minute and thank God I was able to peacefully walk her home. I regularly mention the Start with Yes! book when I talk with friends who are going through the same journey with a parent or spouse.” – Bill, Alzheimers Support Group Attendee

“Start with Yes! is a must-read for all those who interact, work or live with people living with dementia.The content will change the way you see dementia and will give you an arsenal of tools and a clear process on how to effectively interact, listen and respond to those with dementia in a collaborative fashion.  Collaboration makes the person living with dementia feel valued as you tap in to their past and present emotions, memories, likes and dislikes. The method you learn in Start with Yes! proves to be a win-win for everyone touched by the challenges of dementia. – Allison Elkow Lazicky

Purchase Start with Yes!

About the Dementia RAW Method

The cofounders of Silver Dawn Training Institute, Tami Neumann and Cathy Braxton, created the Dementia RAW Method, an introspective improv approach to communication. The goal was to improve the quality of life for those living with dementia by educating, building confidence in and empowering all types of caregivers with a simple yet profound manner of connection. Cathy and Tami focus on alleviating difficult jargon, streamline the concept of communication, build confidence and create a “lifestyle” of connection that could be attained by anyone regardless of age or education level.

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(l) Cathy Braxton (r) Tami Neumann

About Author Tami Neumann

As the Chief Operations Officer of Silver Dawn Training Institute, Tami believes in taking the unconventional steps needed to create a change in culture that the aging community is in desperate need of.  This is reflected in the Dementia RAW Method, CDCS Certification Program and the Dinner Series in which they talk openly and honestly about Death, Dying & Aging, and Sexuality.  Tami is a Certified Dementia Practitioner, and completed all coursework in Nursing Home Administration while spending over 20 years in the Aging Industry.  Over the past 4 years she has hosted the Wego Award Nominated podcast, Conversations In Care & compiled a book based on the conversations she has had on her podcast. Currently, she studies improv under the direction of Antoine McKay and recently launched her new podcast Unscripted:  Life Improvised.

About Author Cathy Braxton

As the Chief Education Officer of Silver Dawn Training Institute, Cathy believes in creating thought-provoking educational content.  Her unapologetic style, allows caregivers to dig deep into empathy and provides a safe space for exploration into this important foundational concept for the Dementia RAW Method, and the Certified Dementia Communication Specialist Training.  She is a published author and blogger for The Chicago Tribune and was the Co-Ambassador for the Chicago Chapter of Aging 2.0 2015-2017.  Cathy has received her B.A. in Psychology from the University of Illinois and has completed all coursework for her M.A. in Health Psychology and Gerontology Studies.  Cathy has been in the industry over 20 years in the aging industry managing memory care units, directing activity programs, providing case management and service coordination, and facilitating support groups.

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Email: sdti@DementiaRAW.com

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For more vetted books on Alzheimer’s and dementia please visit the AlzAuthors Bookstore. Reposted with permission of AlzAuthors, the global community of authors and readers whose lives have been touched by Alzheimer’s and dementia. I am a co-founder and admin.

From the AlzAuthors Blog: Michelle Spray Writes About Her Novel “Lost Memories Found Hope: A Granddaughter’s Story of Love throughout Alzheimer’s”

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By Michelle Spray

I truly feel honored to be included as an integral part of the AlzAuthors group. Not only have I written a book with will make my grandmother proud, I have lived the caregiving experience one hundred percent. I was Grandma’s primary caregiver for seven years and got my on-the-job training simply because I lived there. It was up to me. I learned how to cope, distract, exercise patience, and lean on hope to get through all the emotions of dementia and eventually an Alzheimer’s diagnosis. I understand the stress that families are going through, including worrying and grieving for the Grandma I knew even though she was still alive. The day she no longer recognized me is a moment that will forever be etched on my heart.

Lost Memories front cover 2018I didn’t want to write a sad book about Alzheimer’s because that had already been done, so I used the opportunity to write a fictional story based on Grandma’s Alzheimer’s. I included the funny things she’d say, or how sometimes, even in the midst of it all, she would have a quick reply or joke, that always took me by surprise. At the end of the day, it would be these funny moments that helped me through all times I felt like crying; waiting for the mailman who already came, having her accuse me of stealing her teeth, telling me that the golden years weren’t really golden but instead a little rusty. When I’d ask her how she was feeling, she would tap the table and say, “with my hands.” Oh, how I miss her.

An important thing to note during the book is that I (or Jillian, the granddaughter in this novella) tried to do it all myself until I almost broke. So one thing I can’t stress enough to caregivers is to get help early. Take help when offered, ask for help, set appointments for someone else to take over so you can have a break and leave the house without worrying. Even small moments of respite can do wonders. Don’t be afraid to ask for help. It doesn’t make you incapable, it can only help you be a better caregiver.

All of my reviewers agree that Grandma would be proud of the work I’ve done with this book, bringing her story and memories to life. The overall consensus is that I’ve been able to reflect hope out of difficult moments while always remaining true to Grandma’s personality, love, and feistiness. She was a true pillar in my life. I stepped up when she needed me without question just as she had done for me. For that, I am truly grateful and proud.

This book is dedicated to all those in the thick of their own Alzheimer’s journey. Stay hopeful, ask for help, and keep a journal which may very well be the next AlzAuthors book to help end the stigma of Alzheimer’s.

Purchase “Lost Memories Found Hope: A Granddaughter’s Story of Love throughout Alzheimer’s”

 

About the Author

my profile picMichelle Spray is an additional needs mom living in Connecticut. She’s proud to supply an underlying theme of hope and inspiration in all of her books.

Connect with Michelle Spray

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For more vetted books about Alzheimer’s and dementia please visit the AlzAuthors Bookstore. Reposted with permission of AlzAuthors, the global community of authors and readers whose lives have been touched by Alzheimer’s and dementia.

From the AlzAuthors Blog: Carol B. Amos Shares “H.O.P.E. for the Alzheimer’s Journey”

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By Carol B. Amos

My two brothers and I were devastated when our mother began displaying signs of Alzheimer’s disease in 2002. She lived alone in her home and her nearest adult child lived four hours away. We banded together to face this challenge head-on. We began a period of observing, investigating, collaborating, and careful listening to gain insight into the situation. We visited and called our mother more often. We each solicited advice from caregivers we knew and visited our local Alzheimer’s Association office.

My brothers and I worked hard to help our mother maintain her independence and remain in her home. We worked with her doctors, and after multiple attempts Aricept was prescribed. We hired a social worker and nurse to assist her. When “issues” arose, we never knew if an event occurred as she explained. This was extremely frustrating to us. Eventually a dangerous incident demonstrated that she could no longer live alone. It was difficult taking responsibility for our strong, independent mother.

I learned about Alzheimer’s disease through reading, attending workshops, observing caregivers, and from on-the-job training. I have learned from my successes and my failures during this eleven-year period. I have shared my learning, experience, and encouragement with friends, family, and colleagues as they embarked on their journey. I found that a little information made a big difference in their caregiving, so I wrote the book “H.O.P.E. for the Alzheimer’s Journey.” Help, organization, preparation, and education can make the Alzheimer’s journey less stressful and more rewarding.

Final Approved Cover copy“H.O.P.E. for the Alzheimer’s Journey” equips caregivers for their journey. The book is a combination of structured information, insights, and personal narratives to demonstrate the concepts. The concepts are conveyed in an open, honest, and creative manner using original family email communications. These emails provide insight into our thoughts, concerns, emotions, and deliberations as we realized our mother’s memory loss, sought a diagnosis and treatment, selected housing options, and developed care strategies as our mother continued to deteriorate. The book introduces The Caregiving Principle™, a simple and novel approach that provides a deeper understanding of the person with Alzheimer’s and a framework for the caregiver’s role. The Caregiving Principle™ states that the amount and type of caregiving required is directly related to the needs and capability of the person requiring care. In other words:

“Needs of the Person” – “Needs Filled by the Person” = “Needs to be Filled by the Caregiver(s)

Simply put, if a person has needs and cannot provide for all of their own needs then someone else must provide those needs. The “someone else” is a caregiver. The principle utilizes a holistic approach by using Abraham Maslow’s Hierarchy of Needs to define a person’s needs. Maslow’s Hierarchy of Needs increased my understanding of my mother.

“H.O.P.E. for the Alzheimer’s Journey” has been a blessing to many caregivers since the pre-release in May 2018. My ultimate goal is for the book to become obsolete. I am actively involved with fundraising and advocacy efforts to increase research so that a cure is found for Alzheimer’s disease.

Purchase H.O.P.E for the Alzheimer’s Journey

About the Author

Carol B. Amos started her Alzheimer’s journey when her mother started having memory problems. Carol has immersed herself in Alzheimer’s education by reading and attending conferences, workshops, and support groups. Carol is a CARES Dementia Specialist and is Alzheimer’s Association essentiALZ Plus certified. She was the winner of the 2012 “Your Favorite Memory” essay contest sponsored by the Delaware Valley Alzheimer’s Association. She has a passion to share her knowledge and make the journey for Alzheimer’s caregivers less stressful and more rewarding. She is also working to help eliminate Alzheimer’s disease as an Alzheimer’s Association volunteer, fundraiser, and advocate.

Carol has a B.S. and M.Eng. in chemical engineering from Cornell University. She retired from a thirty-five-year career at The DuPont Company. She is active in her church (youth ministry, women’s ministry, usher board, and construction committee). She has been married to her husband, Alvin, for nineteen years. She enjoys tennis, travel, and gardening at her home in Delaware.

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For more vetted books about Alzheimer’s and dementia please visit the AlzAuthors Bookstore. Reposted with permission of AlzAuthors, the global community of authors and readers whose lives have been touched by Alzheimer’s and dementia. I am a co-founder and admin.