“The Story of AlzAuthors,” or “How 3 Daughters of Dementia Started a Global Community of Authors Sharing their Alzheimer’s & Dementia Caregiving Stories”

The Story of AlzAuthors

Join me as I tell the story of AlzAuthors, the global community of authors sharing their Alzheimer’s and dementia stories to light the way for others, on Friday, June 21st at 2 pm at Middletown Thrall Library, Middletown, New York. This is my fundraising and awareness effort for the Alzheimer’s Association’s The Longest Day, an annual event. You can read more about my personal Alzheimer’s story on my Longest Day Participant Page. 

eReader BHAfter publication of my novel Blue Hydrangeas, an Alzheimer’s love story,  I reached out to two other authors I met online who also published books on this deeply stigmatized subject. What happened next was totally unexpected: We created a movement that includes 200+ authors, a website, bookstore, anthologies, community outreach, and more. Our mission: To bring carefully vetted books and blogs to caregivers and others concerned about Alzheimer’s and dementia and to break through the silence that often accompanies these diseases.

Sharing our stories makes us strong, but sadly too many of those with dementia and their loved ones caring for them are isolated, as shame and stigma often prevent them from disclosing their diagnosis. My  presentation will include a discussion on the power of telling our stories to make change – personally, globally, and legislatively – and how those overcoming or facing dementia and its caregiving can tell their own stories. Continue reading

Father’s Day Memories: My Dad Left Us the Blueprint for How to Be a Great Dad

blueprint for a great dad

Celebrating Father’s Day is bittersweet for me because I suddenly and unexpectedly lost my own father at the tender age of 15. He suffered a heart attack at home one lazy Sunday morning and life was never the same. Ted “Bunky” Kasica was a good man,  and my brothers, mother, and I keenly felt his loss. It’s been 43 years, and I don’t believe any of us ever got over it. In his short life, he left us with many gifts, most importantly a blueprint for what makes a man a great father.

Dad was the 11th of twelve children born to Polish immigrants in South Boston. His own father unexpectedly died when he was just three years old. He never finished high school, but enlisted in the United States Army where he served as a paratrooper in the 82nd Airborne Division. In spite of his humble roots, his early life was one grand adventure. The Army took him out of Boston and stationed him in Germany and Austria for years. His love for that life is clearly documented in the few photographs I have of him as a young soldier: Parachuting out of airplanes, skiing in Austria, and competing as an amateur lightweight boxer.

Once home from the Army he soon met my mother and fell in love, married, and settled down at the age of 28 to a quiet life as a cabinetmaker, with four children, a mortgage, and an ailing heart. Continue reading

Great Summer Reads Book Tour: “The Immundus,” YA Dystopian Fiction from Christina Enquist

Book Description

Would you sacrifice your humanity to save mankind?

IT’S THE YEAR 2828, and Domus is the last remaining country. Divided into twelve walled cities known as genuses, Domus spans what’s known as the purist lands—lands unaffected by the genetic modifications that killed all other species of mammals. But outside the walls of each genus the Immundus threaten the welfare of those within. From a young age, all citizens of Domus are trained for combat against these intruders.

At sixteen, Nia Luna knows little of the Immundus, except for the citywide alarms that ring any time an Immundus nears the genus walls. What she does know is that her own species is dying—their numbers dwindling as a mysterious disease called allagine kills many before their eleventh birthday. The same disease that ravaged her family when it took her sister.

When Nia is recruited into Genesis, a research company pioneering the path to a cure, she knows that her dream to find a cure for allagine is finally within her grasp. But within weeks of starting at Genesis, Nia witnesses something she shouldn’t have—something that changes everything. As she sets down a dangerous path that uncovers national secrets, Nia will have to decide not only what kind of person she wants to be but also how far she’s willing to go to save humanity.

Purchase The Immundus Universal Amazon Link ~  B&N ~ IndieBound ~

Q&A With the Author Continue reading

Great Summer Reads Book Tour! “Daisies in the Driveway” by Lauraine Henderson

Banner June 3_16

Book Description

Allison Lockwood and Gavin Hunt have been offered the chance to take over the Lazy Daisy Inn and Campground so their respective grandparents, the current owners, can retire and marry. It seems all too easy for Ally and Gavin to prove themselves during the six-month probationary period until they’re fighting disasters at the campground and failing at over-optimistic baking expectations.

As Ally and Gavin slowly explore their growing attraction, they help each other fight fires, endure raging storms, and share a few passionate kisses. But there’s more than fires to fight when Ally’s grandfather disapproves of their budding romance and Ally is convinced Gavin has a girlfriend in the wings…a girlfriend expecting his baby!

Ride along as the two unlikely innkeepers figure out how they fit in their new life and learn the lesson taught by the Daisies in the Driveway.

Purchase Daisies in the Driveway

Q&A With the Author Continue reading

Suzanne Bottum-Jones Explains Dementia to Kids in “Nice to Meet You… Again”

Bottum-Jones Canva

By Suzanne Bottum-Jones, RN

Nice To Meet You… Again is the representation of years of sitting with families as a Registered Nurse, holding their hands, witnessing their frustrations, and sharing in their journeys through dementia. After fifteen years of wishing for a tool to help families learn strategies and see hope for their interactions, my father developed dementia, and I decided I needed to move my teaching outside of myself as the deliverer and multiply the effects that I, alone, could not make.  As I prepped for this, I remembered the countless families that made their final decision to stop visiting their loved ones because it was so upsetting to see the changes in their loved one and because of their fear of how these visits were affecting their children. This became my mission: to develop a tool that would help families change these moments of frustration by giving them the tools to help “see” a different expectation and journey, and change the flavor of their interactions.

bottum jones coverIn the short time the book has been available I have been blessed with  many responses from families of how they wished they would have had this resource when they were in this journey, or how it is currently changing their journeys and giving them back their joy with their loved one.  Professionals and family caregivers have stated they carry the book with them because hardly a day goes by in which someone they know or meet shares their journey of dementia. By offering this book, they state that they feel like they can finally do more then just say, “I understand;” in addition they can offer hope. Continue reading

New Release Spotlight: “Sweet Complications,” A Romance Beach Read from Bestselling Author Stacy Claflin

new release spotlight

Powerhouse author Stacy Claflin releases a new sweet romance, Sweet Complications. Stacy is the prolific author of 60 (!!!)  novels and a two-time USA Today bestselling author.  I once asked her how she manages to write so much so fast and she said she’s up before daylight, and everyone else, churning out her books. I would have guessed she never sleeps.

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Book Description

He can have any woman he wants… except her.

NFL quarterback Dylan Manley’s life revolves around his career and the fame associated with it. He’s onl

y back in Indigo Bay to help with a fundraiser in memory of his best friend. But then finds he has to work with Brooke—the one person who has always made him trip over his own feet.

Brooke Davenport is a far cry from the girl next door who left town years ago. Focused on her political aspirations and still recovering from the loss of her doting brother, she wants nothing more than to return to DC for good. But first she has to get through the fundraiser with Dylan, who she blames for her brother’s death.

When a family emergency pulls Brooke’s parents out of town, the success of the fundraiser depends on Brooke and Dylan. He’ll do whatever it takes to show her he’s a new man, but every attempt only makes him look worse. If he can’t make things right, he’ll lose her forever.

Excerpt Continue reading

Audiobook Giveaway! Win a 3-Month Subscription to Audible or Free A-books

This week I’m partnering with Authors XP to bring you a selection of audiobooks to get through your summer schedule with a chance to win a 3-month Audible subscription and free a-books. My YA novel Swim Season is included. For a chance to win a copy of it please respond to this email and tell me: How do you do audiobooks?

Win Audio Books or Subscriptions to AUDIBLE & Gain Access to Deals & Steals on even more!

(3+) Winners of 3 Month Subscriptions to AUDIBLE and Random Audio Book Winners

 

New Release Spotlight: Barbara Silkstone’s New Cozy “Soap on a Rope,” Book 3 in the Cold Cream Murders Series

new release spotlight

Barbara Silkstone visits the blog again with her latest installment in the Cold Cream Murders Series.

_Barbsilkstone-7 copyBook Description

When Nelson Dingler is found dangling from a chandelier—feet-side up—Grams Dingler determines to find her son’s killer. Can Olive help her best friend Lizzy save her feisty grandmother from suffering the same fate? And can the Cold Cream Shop survive while Olive psyches out the killer?

Bonus: Contains a recipe for heavenly lavender lemon honey soap.

Excerpt

Officer Kal wasn’t waiting for me at Lizzy’s. Too bad. I wanted to be sure the women were safe inside for the night. What if the entire Dingler family was in danger? I reached inside my tote feeling around for my can of self-defense hair spray. Unarmed! Not allowed on the flight, I’d left it home.

A slobbering red tongue greeted Lizzy as she unlocked her door. “Enough WonderDog! Sit!”

Instead of obeying, the gangly hound pawed at the front door once Lizzy closed it.

“Dave was supposed to walk WonderDog before the dinner rush. I don’t think he’s been emptied. Maybe Dave couldn’t break away.”

She clipped a leash to the dog that bore a striking resemblance to the wolf in Little Red Riding Hood. “Be right back.”

“Grams would you like some tea? Maybe Lizzy has some chamomile?”

“That would be nice dear.”

We left her bag at the door and walked into the kitchen.

A bright turquoise teakettle sat on the stove. I filled it with water, but hesitated. One of Lizzy’s new finches swooped down and landed on my shoulder. Fearful that turning on the gas stove might result in an injury to the bird, I stopped my tea making. Continue reading

AlzAuthor Daniel Kenner Shares How He Used an Oral History Project to Preserve His Parents’ Life Stories & Legacies

Kenner, Daniel

By Daniel Kenner

After many long months of exhaustive family struggles, cognitive and behavior changes, and a lengthy process of medical evaluations and tests, my dad, Buddy, received the devastating diagnosis of Frontotemporal Lobe Dementia (FTD). It was Valentine’s Day, 2013. FTD is a rare neurological disease that affects personality and social behavior, speech and language comprehension, and executive functions involved in reasoning, decision-making, and planning. Never to be outdone, my mom, Maureen, always the fierce competitor, was diagnosed with Stage 4 colon cancer only four months later.

That year, my best friend’s parents died in a terrible plane crash and that sudden tragedy struck me in such a profound way. “I am going to lose my mother and my father,” I remember thinking, “but I still have time.” I don’t know which is worse: losing parents instantly or watching them slowly deteriorate, but I knew I wouldn’t squander the chance to say goodbye.

Dad was a natural storyteller, and through that he became my favorite story to tell. He was my hero. The highest compliment I can give of my dad was he had a son that idolized him. Everything he loved I was determined to love just as much or more: Bob Dylan, Lenny Bruce, Marlon Brando, absurdist theater, and the San Francisco 49ers. But dementia made him quiet and apathetic; he no longer expressed an interest in the things we used to do together. Continue reading

Kick Start Your Summer Reading With 10 Popular YA Audiobooks Plus a Giveaway!

I Love Audiobooks

Summer will soon be upon us and that means more time to read!

But if you’re active you may not want to sit around with a book.

No problem!

Audiobooks are perfect for people on the go. You can listen to a great story while on the road – they’re terrific for long drives – or while lounging in the pool or on a hammock, taking long walks, even mowing the lawn.

Here is a collection of great Young Adult titles from Clean Indie Reads authors for your listening pleasure. We offer a variety of genres: sports, paranormal, fantasy, historical fiction, thriller, romance, and more. Peruse the selections, purchase from Amazon or Audible, then enter our raffle to win a free book.

How do you do audiobooks? Continue reading